Deborah C. Peel, MD is the Founder and President of Patient Privacy Rights (PPR), the world’s leading health privacy advocacy organization, with 9,000 e-members in all 50 states. She also leads the bipartisan Coalition for Patient Privacy, representing 50 organizations with 10.5 million members, including the Gun Owners of America and the ACLU.
Her work on privacy grew from her experiences in the most privacy-sensitive specialties in Medicine, Psychiatry and Freudian Psychoanalysis. She saw the need for a national organization to defend individuals’ human and civil rights to health privacy. PPR promotes realistic, trustworthy technology solutions that enable you to keep your medical data private.
Patient Privacy Rights’ mission is to restore patient control over personal health information. To accomplish our mission, we educate and work collaboratively with patients and organizations to restore the ethical right to health information privacy, the foundation of the patient-physician relationship, in law, policy, and technology.
To educate the public, Patient Privacy Rights created the annual International Summits on the Future of Health Privacy, co-hosted by the O’Neill Institute for National and Global Health Law at Georgetown Law Center. Top national and international privacy experts from civil society and advocacy, academia, industry, and government discuss urgent health privacy issues and realistic solutions. The Louis D. Brandeis Privacy Awards are given each year at the summit. The 7th summit will be held June 1-2, 2017. The summits are FREE to attend or watch via livestream.
Patient Privacy Rights’ Privacy Trust Framework is another valuable tool for education and research. Compliance with 15 principles based on FIPs is assessed using 75+ auditable criteria that measure how effectively technology systems protect data privacy. Harvard researchers recognized the framework as setting the ‘gold standard’ for privacy and trust in the world. See the paper in Technology Science at: http://techscience.org/a/2015081102/